Mike's Cancer Patient Experience (S2E34) by Mandy Wintink

A year ago Mike was diagnosed with renal cell carcinoma, a cancer of the kidneys. He had surgery 6 months later. His experience was, on paper, great because everything went medically well. But his patient experience made him think very deeply about how to improve the cancer patient experience. Mike is the Design Director at Healthcare Human Factors, a consultancy through University Health Network in Toronto. He is fortunate to be in a position to rethink and design cancer care and he’s doing that now. Here we talk about his experience, which laid a foundation for rethinking cancer care!

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Sarah Reacts to News That Her Liver Tumour Shrank (S2E31) by Mandy Wintink

Sarah just got news that one of her tumours (a liver tumour) shrunk! Yay! It appears to be from the radiation she had back in March, which is welcomed news after being a bit confused as to what the initial report meant. She shares this with us today in context with the past 5 days of the perpetual roller coaster she is on. We end with a little life coachey-rest officer discussion about how she is planning to manage her energy for an upcoming trip to Australia.

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When new symptoms pop up with Sarah (S2E17) by Mandy Wintink

In this episode, originally sent as a voice memo to Mandy and Mike, Sarah recounts the immediate aftermath of being kept up overnight by side effects of one of her treatments. This was back in September 2018, before recording the first podcast we published with Sarah on Mandyland. But she wants to share this note as it captures feelings of vulnerability, frustration, confusion, and exasperation that arise in dealing with cancer treatment. It's happened a few times now that a new symptom pops up and spurs a chain of medical appointments, scans, and tests. Figuring out what is going both in her own experience in her body, and from the perspective of multiple doctors, has proven to be one of the most challenging types of cancer experience. At present, Sarah's happy to report the small probably benign lesion for which this episode is named has not grown or caused any significant problems since it showed up, and her brain remains entirely healthy and tumor-free. 

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The slowness of cancer with Sarah (S2E9) by Mandy Wintink

In this monologue, Sarah recounts her feelings over the past 3 years of dealing with cancer both how it looked from the outside and how it felt from the inside. At the beginning, she wondered "how am I going to come out the other side?” It felt like she was walking through a doorway in Alice in Wonderland and then suddenly stumbled upon the strange universe. She realized that the way that you look at the world shifts. And a big theme for her, is that cancer is slow. 

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Talking with Sarah about her Cancer (S2E6) by Mandy Wintink

Sarah and I have been talking for a long time about her cancer but this conversation was planned as a way of starting her series of episodes for Mandyland. We had a bunch of ideas planned but realized early that it was hard to figure out where to start. So we started with why she has been hesitant to share this, despite her desire to. That got us talking about her career and the impact cancer has had on her career. From there we talk about where she is now and a brief introduction to her cancer. We end with how valuable it is to talk about stuff.

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Mike has cancer (S2E2) by Mandy Wintink

So we’re starting off with a doozy… me and Mike talk about his recent diagnosis of Renal Cell Carcinoma. Yup, that’s what’s been happening over the summer. It started with a few scans for an unrelated reason and a tumour in his left kidney was detected incidentally. Surgery is planned and there is a good prognosis for it being curable. Here we discuss our feelings about it… sort of.